Our decision to fundraise for heartkids was inspired by Nathan and my own personal experience with CHD.
At 22 weeks pregnant our baby was diagnosed with heterotaxy syndrome-right atrial isomerism. The right side of our bubs heart is much larger than the left and the left side is not working at all. The blue and red blood in babys heart are mixing and therefore will affect their energy levels and rate of their development, especially in their earlier years. Our baby also has many issues associated with the plumbing of their heart which will require multiple open heart surgeries to correct. This is a very rare and complex heart disorder which also affects some of our baby's other internal organs and a possible absence of the baby's spleen. Even after surgery our baby still faces the risk of heart failure and the possibility of requiring a heart transplant later on in life. Heart kids is an organisation that provides families like Nathan and myself assistance and support when raising a child with CHD. They are a not for profit organisation run by volunteers. Without HeartKids, parents in our position would be left without a support network when raising a child with CHD. They also serve as an organisation who raise money towards better research and understanding towards complex heart disorders. Organisations like this give our children a fighting chance by investing in research which continues to improve the survival rates, quality and quantity of life in these babies. Their level of expertise has really helped us better understand how to raise a child with CHD as well as reassure us when we have felt lost or alone. Without donations, HeartKids would never exist and I couldn't imagine how families like ours would get through without them. We hope to raise all that we can in appreciation of Heartkids and everything they do. Any amount, big or small, is very much appreciated. Even if you cannot afford to donate, sharing my page could go a long way in helping us reach our goal. Thank you in advance, Nathan, Emma and baby Jones 💛